Adaptación de la versión para pacientes de las recomendaciones para el tratamiento hacia un objetivo (T2T) en artritis reumatoidea para su uso en Argentina
Palabras clave:
T2T, artritis reumatoidea, recomendaciones, Argentina
Resumen
En el año 2008 fueron publicadas las recomendaciones para el tratamiento hacia el objetivo en artritis reumatoidea (treat to target: T2T). Originalmente diseñadas como recomendaciones para guiar a reumatólogos en el tratamiento de la AR, en el año 2011 se public la primera versión para pacientes de estas recomendaciones en inglés.Objetivo: validar la versión para pacientes de las recomendaciones T2T para su uso en Argentina a través de la adaptación transcultural de la versión original.Método: Se realizó un proceso de adaptación transcultural a partir de la versión original. De este proceso de traducción y retraducción y del análisis por parte de un comité de expertos, se obtuvo una versión prefinal. Esta versión fue sometida a una prueba de campo mediante una entrevista a pacientes alfabetos consecutivos con diagnóstico de AR en diferentes centros de Buenos Aires, Ciudad de Buenos Aires y Santa Fe. En esta entrevista se evaluó validez de forma, equivalencia conceptual, interpretabilidad y aceptabilidad. El resultado obtenido de estas entrevistas fue discutido con el comité designado de investigadores para desarrollar una versión final de la pieza validada.Citas
I. Smolen JS, Landewé R, Breedveld FC, et al. EULAR recommendations for the management of rheumatoid arthritis with synthetic and biological disease-modifying antirheumatic drugs: 2013 update. Ann Rheum Dis 2013; (0), 1-18.
II. Barton JL, Trupin L, Tonner C, et al. English language proficiency, health literacy, and trust in physician are associated with shared decision making in rheumatoid arthritis. J Rheumatol. 2014;(41)7:1290-97.
III. Makoul G, Clayman ML. An integrative model of shared decisions making in medical encounters. Patient Educ Couns. 2006;60:301-12.
IV. Arora NK, Ayanian JZ, Guadagnoli E. Examining the relationship of patients´ attitudes and beliefs with their self-reported level of participation in medical decision-making. Med Care 2005;43:865-72.
V. Wilson SR, Stub P, Buist AS, et al. Shared treatment decision making improve adherence and outcome in poorly controlled asthma. Am J Respir Crit Care Med. 2010;181:566-77.
VI. Smolen JS, Aletaha D, Bijlsma JW, et al. Treating rheumatoid arthritis to target: recommendations of an international task force. Ann Rheum Dis 2010; 69: 631-7.
VII. Smolen JS, Breeveld FC, Burmester GR, et al. Treating Rheumatoid Arthritis to Target: 2014 update of the recommendations of an international task force. An Rheum Dis. 2015;0:1-13.
VIII. De Witt MPT, Smolen JS, Gossec L, et al. Treating rheumatoid arthritis to target: the patient version of the international recommendations. Ann Rheum Dis 2011;70:891-895.
IX. Beaton DE, Bonbardier C, Guillemin F, et al. Guidelines for de process of cross-cultural adaptation of self report measures. Spine. 2000;25:3186-91.
X. Agra Y. Adaptación transcultural de cuestionarios en ciencias de la salud. Medifam 1997;7:13-6.
XI. Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, et al. The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis Rheum 1988;31:315-24.
XII. O´Connor AM, Stacey D, Légaré, et al. Knowledge translation form patients: methods to support patients participation in decision making about preference sensitive treatment options in rheumatology. In evidence based rheumatology. Edited by TugwellP, London. MBU Publishing Group. 2004.
XIII. Joosten EAG, DeFuentes-Merillas L, De Weert GH, et al. Systematic review of shared making decision making on patient satisfaction, treatment adherence and health status. Psychoter Psycosom. 2008; 77:219-26.
XIV. Kassier JP. Incorporating patients´preferences into medical decisions. N Eng J Med. 1994; 330:1895-6.
XV. Gravel K, Legare F, Graham I. Barriers and facilitators to implementing shared decisionsmaking in clinical practice: a systematic review of health professional´s perceptions. Implement Sci. 2006,1:16.
XVI. Braddock CH III, Edwards KA, Hasenberg NM, et al. informed decision making in outpatient practice: time to get back to basic. JAMA. 1999,282:2313-20.
XVII. Scmajuk G, Trivedi AM, Solomon DH, et al. Receipt of the disease modifying antirheumatic drugs among patients with Rheumatoid arthritis in Medicare managed care plans. JAMA. 2011;305:480-6.
XVIII. Suarez-Almazor ME, Barrios-Rivera JP, Cox V, et al. Iniciation of disease modifying antirheumatic drugs in minority and disvadvantaged patients with rheumatoid arthritis. J Rheumatol. 2007;34:2400-7.
XIX. Yelin E, Tonner C, Kim SC, et al. Sociodemographic disease health system and contextual factors affecting the initiation of biologic agents in rheumatoid arthritis: a longitudinal study. Arthritis Care Res. 2013.
XX. Brach C, Dreyer BP, Schillinger D. Physicians´ roles in creating health literate organizations: a call to action. J Gen Intern Med. 2014;29:273-5.
XXI. Paasche Orlow MK, Parker RM, Gazmararian JA, et al. The prevalence of limited health literacy. J Gen Intern Med. 2005;20:175-84.
XXII. Orozco MC, Marengo MF, Waimann CA, et al. The Impact of Inadequate Health Literacy on Disease Activity in Patients with Rheumatoid Arthritis. ARHP Congress. 2014. Abstract 2430.
XXIII. Mirsh J. Can Shared decision making help eliminated disparities in rheumatoid arthritis outcome? J Rheumatol. 41(7):1257-9.
XXIV. Lim A, Ellis C, Brooksby A, et al. Patient satisfaction with rheumatology practitioner clinics: can we achieve concordance by meeting patients´s information needs and encouraging participatory decision making? Ann Acad Med. 2007;36:110-14.
XXV. Nota I, Drossaert C, Tall E, et al. Patient participation in decisions about disease modifying antirheumatic drugs: a cross sectional survey. BMC Musculosk Dis. 2014;15:333.
II. Barton JL, Trupin L, Tonner C, et al. English language proficiency, health literacy, and trust in physician are associated with shared decision making in rheumatoid arthritis. J Rheumatol. 2014;(41)7:1290-97.
III. Makoul G, Clayman ML. An integrative model of shared decisions making in medical encounters. Patient Educ Couns. 2006;60:301-12.
IV. Arora NK, Ayanian JZ, Guadagnoli E. Examining the relationship of patients´ attitudes and beliefs with their self-reported level of participation in medical decision-making. Med Care 2005;43:865-72.
V. Wilson SR, Stub P, Buist AS, et al. Shared treatment decision making improve adherence and outcome in poorly controlled asthma. Am J Respir Crit Care Med. 2010;181:566-77.
VI. Smolen JS, Aletaha D, Bijlsma JW, et al. Treating rheumatoid arthritis to target: recommendations of an international task force. Ann Rheum Dis 2010; 69: 631-7.
VII. Smolen JS, Breeveld FC, Burmester GR, et al. Treating Rheumatoid Arthritis to Target: 2014 update of the recommendations of an international task force. An Rheum Dis. 2015;0:1-13.
VIII. De Witt MPT, Smolen JS, Gossec L, et al. Treating rheumatoid arthritis to target: the patient version of the international recommendations. Ann Rheum Dis 2011;70:891-895.
IX. Beaton DE, Bonbardier C, Guillemin F, et al. Guidelines for de process of cross-cultural adaptation of self report measures. Spine. 2000;25:3186-91.
X. Agra Y. Adaptación transcultural de cuestionarios en ciencias de la salud. Medifam 1997;7:13-6.
XI. Arnett FC, Edworthy SM, Bloch DA, McShane DJ, Fries JF, Cooper NS, et al. The American Rheumatism Association 1987 revised criteria for the classification of rheumatoid arthritis. Arthritis Rheum 1988;31:315-24.
XII. O´Connor AM, Stacey D, Légaré, et al. Knowledge translation form patients: methods to support patients participation in decision making about preference sensitive treatment options in rheumatology. In evidence based rheumatology. Edited by TugwellP, London. MBU Publishing Group. 2004.
XIII. Joosten EAG, DeFuentes-Merillas L, De Weert GH, et al. Systematic review of shared making decision making on patient satisfaction, treatment adherence and health status. Psychoter Psycosom. 2008; 77:219-26.
XIV. Kassier JP. Incorporating patients´preferences into medical decisions. N Eng J Med. 1994; 330:1895-6.
XV. Gravel K, Legare F, Graham I. Barriers and facilitators to implementing shared decisionsmaking in clinical practice: a systematic review of health professional´s perceptions. Implement Sci. 2006,1:16.
XVI. Braddock CH III, Edwards KA, Hasenberg NM, et al. informed decision making in outpatient practice: time to get back to basic. JAMA. 1999,282:2313-20.
XVII. Scmajuk G, Trivedi AM, Solomon DH, et al. Receipt of the disease modifying antirheumatic drugs among patients with Rheumatoid arthritis in Medicare managed care plans. JAMA. 2011;305:480-6.
XVIII. Suarez-Almazor ME, Barrios-Rivera JP, Cox V, et al. Iniciation of disease modifying antirheumatic drugs in minority and disvadvantaged patients with rheumatoid arthritis. J Rheumatol. 2007;34:2400-7.
XIX. Yelin E, Tonner C, Kim SC, et al. Sociodemographic disease health system and contextual factors affecting the initiation of biologic agents in rheumatoid arthritis: a longitudinal study. Arthritis Care Res. 2013.
XX. Brach C, Dreyer BP, Schillinger D. Physicians´ roles in creating health literate organizations: a call to action. J Gen Intern Med. 2014;29:273-5.
XXI. Paasche Orlow MK, Parker RM, Gazmararian JA, et al. The prevalence of limited health literacy. J Gen Intern Med. 2005;20:175-84.
XXII. Orozco MC, Marengo MF, Waimann CA, et al. The Impact of Inadequate Health Literacy on Disease Activity in Patients with Rheumatoid Arthritis. ARHP Congress. 2014. Abstract 2430.
XXIII. Mirsh J. Can Shared decision making help eliminated disparities in rheumatoid arthritis outcome? J Rheumatol. 41(7):1257-9.
XXIV. Lim A, Ellis C, Brooksby A, et al. Patient satisfaction with rheumatology practitioner clinics: can we achieve concordance by meeting patients´s information needs and encouraging participatory decision making? Ann Acad Med. 2007;36:110-14.
XXV. Nota I, Drossaert C, Tall E, et al. Patient participation in decisions about disease modifying antirheumatic drugs: a cross sectional survey. BMC Musculosk Dis. 2014;15:333.
Publicado
2015-12-01
Cómo citar
1.
Velasco Zamora JL. Adaptación de la versión para pacientes de las recomendaciones para el tratamiento hacia un objetivo (T2T) en artritis reumatoidea para su uso en Argentina. Rev. Argent. Reumatol. [Internet]. 1 de diciembre de 2015 [citado 5 de febrero de 2025];26(4):12 -18. Disponible en: https://ojs.reumatologia.org.ar/index.php/revistaSAR/article/view/641
Sección
Artículo Original
Derechos de autor 2015 A nombre de los autores. Derechos de reproducción: Sociedad Argentina de Reumatología
Esta obra está bajo licencia internacional Creative Commons Reconocimiento-NoComercial-SinObrasDerivadas 4.0.
